It is now possible to buy genetic tests via the internet – send your money and saliva to a privately owned company on the other side of the world, and receive your genetic code, in order to find relatives, receive details on health risks, and take part in research.
What happens when genetic testing moves away from the clinic into the space of the internet, unregulated for selling medicine and medical devices. What are the implications of such new practices for medical professionals, new media companies, and for people, as patients and carers?
This event marks the publication of CyberGenetics, Health Genetics and New Media, by Anna Harris, Susan Kelly and Sally Wyatt. Experts from different fields, including ethics, genetics, anthropology and science & technology studies will discuss the latest findings and insights on possibilities and consequences of cybergenetics and online testing.
The event will also feature a poetry reading by Caoilinn Hughes, whose poetry often features historical and contemporary scientific topics.
- Anna Harris, Assistant Professor Technology and Society Studies, Maastricht University and Susan Kelly, Associate Professor Sociology, Philosophy and Anthropology, University of Exeter – CyberGenetics. The gift that keeps on giving
- Cock van Duijn, Professor of Genetic Epidemiology, Erasmus University Medical Center – The complexity of complex diseases in direct-to-consumer testing
- Anita Hardon, Professor of Anthropology of Care and Health, University of Amsterdam – Collaborative experiments with designer drugs online
- Annelien Bredenoord, Associate Professor of Medical Ethics, University Medical Center Utrecht – Genetics goes online: in need of CyberGen-ethics?
Caoilinn Hughes, poet, will read from her prize-winning collection Gathering Evidence.
Sally Wyatt, senior researcher Digital Humanities at the Academy institute Huygens ING, director Netherlands Graduate Research School of Science, Technology and Modern Culture (WTMC) and Professor of Digital Cultures in Development, Maastricht University will act as chair for the evening.